LOYD: Inclusion Roundtable

"There seems to be a growing number of kids with special needs" one program coordinator says. "In the [years] I have worked here, I don't know what it is... they just seem to need more and more." What do you do when all your kids have special needs? One site director reported that in the same program were children presenting ADD, OCD, PTSD, and Spectrum Disorders. Another program director asked whether how to practice inclusion when what seems to work is to remove the child from time to time. "If they're not included in gym, then what? If they are just put on the computer because that's the only way not to cause trouble... are we doing a service just babysitting?" What if the funding has remained flat (or vanished) while the needs increased as well as higher standards of quality. These questions are far above the old format of Inclusion that were challenges are posed and then strategies are employed. When people know several strategies but are overwhelmed, what then? "How do typical kids fit in when many children have challenges"

It appears from comments at the Roundtable that Inclusion is still part of the wealth of services that Out-of-School Time programs can provide and researchers such as Gary Siperstein of the Center for Social Development and Education claim that many school environments can learn from the success of Inclusion in Out-of-School. This is in keeping with the strong relationship-base within many programs and the flexibility that programs have in creating activities that instruct about life as well as socialize. Out-of-School staff want an open environment. They want to make accommodations as well as many at the Roundtable knew the basics about most disabilities and some had worked in therapeutic Out-of-School programs for years. There was a healthy feeling of "try and try again" in letting kids come to the program as who they were and to move them into forming new relationships with their peers as well as push out into new experiences. Nevertheless, there was frustration as it seems that many directors are beyond the "basics" of inclusion and are ready for the next level - a level of complexity that no longer allows for solutions on the cheep but a more thoughtful approach and consistent high-level supports to staff and understand the limits of Inclusion.

One limit would be over-representation of children and youth with special needs within a program. The other limit may be resources. A program that takes in a child or youth who otherwise has a one-on-one during the day may not be able to absorb that child or youth. Programs themselves need to have policies in place that structure how program directors can communicate to families the benefits of including their child in the program as well as some of the limitations. However, if there is a language barrier or family members are opposed to discussing a perceived condition, what then? When a parent demands that their child is included but not with a realistic timeframe or perhaps without taking into consideration the needs of other children or youth at the program, what then? A child with Autism may not be able to run into the program and be included in the first day, or three weeks, but may need time as well as the right amounts of inputs from staff. Too much and the staff forces relationships - too little and there is risk of a benign neglect. This time to negotiate with one family or parent may be available, but what if there are a majority of parents and families with similar demands but divergent issues. Again, the "all or nothing" approach to Inclusion may put ideology over practicality.

One interesting observation from this discussion and the many questions was that the majority of issues were with emotional or emotional disabilities. In an on-line survey of participants 82% wanted assistance on children and youth with ADD/ADHD. Emotional disabilities came in second at 73% and trailing that was working with children with undiagnosed disabilities at 55%. Amongst the "traditional" disabilities such as mobility, cognitive only 9% felt they needed support in those areas.

Programs are asking for increased assistance in providing quality training to staff (78%) and assistance in funding to pay for additional services (82%). This later one is such a complex subject it will be addressed in another posting at a later date.

There is good news and many free resources on-line. BOSTnet has some resources available on Inclusion that may help in training staff and funding opportunities are always included in the BUZZ and the website. Resources on the website are divided into different areas, the most predominant being sports and arts inclusion. These areas were central to a series of BOSTnet events in previous years under the LOYD initiative. The idea that sports (physical activity) and arts can serve as a way to include more children and youth with special needs and that these not form the basis of the program but can be engaged as needed. These areas are useful no matter what the program's own content is - such as academics, because with the flexibility that programs have, setting up time to work on an arts project or engage in physical activity may serve to get children to work together. BOSTnet is also working on the 5th All Means All Conference for 2009 which will be shaped in part by conversations in the field.

While there was a good deal of information covered in the presentation, this Roundtable seems to have raised more complex questions than answered them. We hope that we can work on these issues and find solutions that reinvigorate the field to reach out to children and youth with special needs and not be overwhelmed.